The group has performed and reported  a large series of clinical studies and has a strong international record. Several projects have focused on the analysis of predictive factors for response to various therapies, and others have piloted new treatment concepts. NMDSG also participates in an EU funded MDS Registry for low-risk MDS aiming to assess how disease evolves and is treated in the clinical practice. The prime aim of NMDSG is to run investigator-initiated studies, but we also participate in several corporate protocols evaluating the effects of new drugs.

NMDSG has arranged two International MDS courses in Stockhom 2006 and in Copenhagen 2008. Moreover, we have in collaboration with the International MDS Foundation arranged three patient forums; Stockholm 2006, and Copenhagen and Lund 2008. A fourth forum will be held in Stockholm during the spring 2009.

Our website aims at  serving study group members and Nordic hematologists and to provide basic information for patients. The open pages include contact information for the secretariat and all national and regional coordinators, as well as short descriptions of ongoing NMDSG studies. There is also patient information in all Nordic languages. The Nordic Guidelines for management of MDS was published in November 2004, and is regularly updated, next time in November 2008. Member pages contain study protocols and reports, and equivalent information.

Nordic MDS group meetings . These are announced at the open pages and academic institutions and hospitals are welcome to send participants to the meetings, which are open for all interested colleagues.

Eva Hellström-Lindberg
September 19, 2008
President, Nordic MDS Group